Book Launch

Fall and Recovery is out today! You can find recent print and podcast interviews on the Media/Events page. I created a countdown on Instagram and Facebook with advocacy tips. I thought I’d take a moment to share those with you!

Order Fall and Recovery online or from your favorite local book seller!

I’m signing books tonight at The BookMark Shoppe in Brooklyn, NY at 7pm.

Remembering Kindness

Last month, my publicist sent me an article request from Kind Over Matter. “Their main focus is kindness,” she said. I immediately thought about a difficult moment I had when the boys were young and the kindness of a complete stranger. It was something I’d never written about before. Check out Remembering Kindness and learn about this unforgettable experience.

For recent interviews and upcoming book events, check out my Media/Events page.

A Long 24 Hours

The past 24 hours have been exhausting. It’s not an unusual statement for a parent. For me, it started with Benjamin having a seizure during dinner last night. It was a big seizure; one he wouldn’t recover from without emergency medication. I can spot them immediately. There’s something about the way his eyes wander, his hands sweat, and his arms suddenly release, so I can easily move his elbows away from his body. After administering the valium, I spent the next seven hours monitoring his breathing, wiping his face of vomit, willing him to sleep peacefully for just a little while, and hoping that when he woke, he would look at me directly when I called his name. I showered him somewhere around 1 a.m. and, convinced that he’d sufficiently emptied his stomach and wouldn’t retch again, administered his regular seizure medication through his feeding tube while he was sleeping, and monitored him until 3 a.m. while doing laundry.

Continue reading

Seven Months to Publication

This past weekend, Sebastian asked me, “How many pages are in your book?” Maybe he’s trying to calculate how long it will take him to get through it. I’ve insisted that he read it before it’s published.

Fun Fact: Sebastian helped me choose the book’s subtitle: Raising Children with Disabilities Through Lessons Learned in Dance.

To answer his question, it’s 243 pages long. My younger self could never have imagined writing an entire book. To find out a little more about my work ethic, check out my interview with Bold Journey.

CanvasRebel

JoanneDeSimone--Media

Many of you know that I have been working on a memoir for a long time. Publishing a book can be a long and difficult process. No joke, I started writing my manuscript in 2011. Parenting two children with disabilities taught me a little something about perseverance. I’m happy to officially announce that Fall and Recovery: Raising Children with Disabilities Through Lessons Learned in Dance will be published in August 2024.

You can read more about it and get a sneak peek of the book cover in an interview I did with CanvasRebel.

Enjoy!

Photo Credit: Art by Corie