Fall and Recovery is out today! You can find recent print and podcast interviews on the Media/Events page. I created a countdown on Instagram and Facebook with advocacy tips. I thought I’d take a moment to share those with you!
Order Fall and Recovery online or from your favorite local book seller!
The past 24 hours have been exhausting. It’s not an unusual statement for a parent. For me, it started with Benjamin having a seizure during dinner last night. It was a big seizure; one he wouldn’t recover from without emergency medication. I can spot them immediately. There’s something about the way his eyes wander, his hands sweat, and his arms suddenly release, so I can easily move his elbows away from his body. After administering the valium, I spent the next seven hours monitoring his breathing, wiping his face of vomit, willing him to sleep peacefully for just a little while, and hoping that when he woke, he would look at me directly when I called his name. I showered him somewhere around 1 a.m. and, convinced that he’d sufficiently emptied his stomach and wouldn’t retch again, administered his regular seizure medication through his feeding tube while he was sleeping, and monitored him until 3 a.m. while doing laundry.
This past weekend, Sebastian asked me, “How many pages are in your book?” Maybe he’s trying to calculate how long it will take him to get through it. I’ve insisted that he read it before it’s published.
Fun Fact: Sebastian helped me choose the book’s subtitle: Raising Children with Disabilities Through Lessons Learned in Dance.
To answer his question, it’s 243 pages long. My younger self could never have imagined writing an entire book. To find out a little more about my work ethic, check out my interview with Bold Journey.